It just gets unimaginably sicker. This woman came to the US at the age of 7, invited because of a rare disease she has. She was invited to participate in trials for treatment. The trials were successful and she is now in her 20s but still needs treatment to stay alive. Meanwhile what was learned from her has helped others. She was told this week by the Trump to get out of the US. The story is much more poignant than I can say, read this:
Sick migrants ordered out of the country
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